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· “children and adults living with prader-willi syndrome face the world with such bravery and resilience and on this day, we celebrate them and the blessings that they bring to our lives. ” · as rare disease day approaches on february 28, we want to spotlight the extraordinary qualities of our children with prader-willi syndrome, celebrating their unique … · these success stories of individuals with prader-willi syndrome highlight the resilience, determination, and achievements of those living with this rare genetic disorder. We were all on a mission to show the world that every child, regardless of their challenges, … · over time, the diagnosis that had initially felt like a weight became a badge of honor – a testament to love, resilience, and unwavering dedication. Clementine is the youngest of four children, and up until her birth, there. · receiving a prader-willi syndrome (pws) diagnosis can feel overwhelming, especially when it comes without warning. In fact, there are many positive characteristics and qualities i have identified in people with prader-willi syndrome throughout the years that are often overlooked. It includes easy-to-read articles, activities, puzzles, and tips. Olivia shows many of the typical signs of living with prader-willi: The images i had had of my child before i gave birth disappeared and a new, rare and unique picture appeared. · this condition can present a range of challenges for individuals and their families, but there are also many inspiring stories of resilience and determination among those living with pws. A chronic feeling of hunger, low muscle tone, cognitive disabilities, problem behaviors and frequent skin picking. · despite these challenges, many individuals with pws demonstrate remarkable hope and resilience as they navigate through life, finding ways to thrive and overcome obstacles. Receiving a prader-willi syndrome (pws) diagnosis can feel overwhelming, especially when it comes without warning. Wise owl feathers is a magazine from pwsa uk made for adults, by adults with pws. The magazine highlights stories and …